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Who cares
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Sponsors
No co-sponsors yet.
History
- Referred to health
Companion bill
The same bill in the other chamber. A bill becomes law when one version passes both houses and the governor signs it, so either number can carry it.
Requires written notification to parents of infants whose DNA or blood spots are retained
In Assembly Committee · Health · Sponsor Linda Rosenthal
Full text
The text isn't available here yet. Check nysenate.gov.
Sponsor's memo
Title of bill
An act to amend the public health law, in relation to parental notification of newborn DNA storage
Purpose
The purpose of this legislation is to require parental consent for the retention of genetic material collected from infants taken following birth.
Summary of provisions
The bill will amend the public health law to add section § 2500-k, stating that notwithstanding any other provision of the law to the contrary, no test, DNA, blood spot or other genetic information shall be sent to any lab or retained with the infant's identifying information without written consent from the infant's parents.
Justification
Medical data is routinely collected from infants by hospitals without parental awareness or consent. While screening for genetic diseases at birth is a worthy and beneficial action, the storage of this information linked to the subject's identity is an unnecessarily invasive policy. New York currently mandates the storage of this genetic information for 27 years, an unreasonably long time for data to be held without consent.
Legislative history
New bill.
Fiscal implications
None.
Effective date
This act shall take effect immediately.
Summaries, headlines and scores are AI-generated from the official bill text. How we score bills. Source: NYS Open Legislation.