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A1220Assembly2017-2018 Session

Notify Parents on Infant DNA

Official title

“Requires written notification to parents of infants whose DNA or blood spots are retained”

Sponsor Linda RosenthalAD-67Affects Health
Status
In Assembly Committee
Health
Impact
4/10
Low
Passage
0%

Bill progress

Step 2 of 7

In committee · Health

What's happening

This bill requires written parental consent before any newborn DNA or genetic information is stored or used beyond necessary medical testing.

Why it matters

  1. Strengthens parental control over newborns’ genetic privacy. by requiring explicit written consent before the state or medical providers can store, retain, or use a baby's DNA or genetic samples for anything beyond immediate, necessary medical testing.

  2. Limits the potential for unauthorized research or secondary use. of newborn genetic material, addressing concerns about how such data could be used in the future for research, data sharing, or other non-medical purposes.

  3. Addresses privacy and ethical issues. by ensuring parents are fully informed and must actively agree before their child’s genetic information is stored, helping to build public trust in newborn screening programs while guarding against unwarranted government or commercial access.

  4. Could affect medical research and public health initiatives. that rely on retained newborn samples, potentially making it harder to use these samples for broader studies unless parents specifically consent, which may slow or complicate some scientific efforts.

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Who cares

Headline styles

Notify Parents on Infant DNA

Plain English, a few words. Used as the page title.

Sponsors

Primary sponsor
Linda Rosenthal

Assembly Member · Assembly District 67

History

  1. Referred to health
  2. Referred to health

Full text

1 pageUnderlined is new[Struck] is removedOfficial text on nysenate.gov ↗

STATE OF NEW YORK

1220

2017-2018 Regular Sessions

IN ASSEMBLY

January 11, 2017

Introduced by M. of A. ROSENTHAL -- Multi-Sponsored by -- M. of A. CRES- PO, FINCH, GLICK, HOOPER, PERRY, RAIA -- read once and referred to the Committee on Health

AN ACT to amend the public health law, in relation to parental notification of newborn DNA storage

The People of the State of New York, represented in Senate and Assembly, do enact as follows:

Section 1. The public health law is amended by adding a new section 2500-l to read as follows:

§ 2500-l. Parental consent for newborn DNA storage. Notwithstanding any other provision of law, rule or regulation to the contrary, no test, DNA, blood spot or other genetic information shall be retained with the infant's identifying information for any period of time or distributed/sent to any lab for any purpose other than what is necessary for the evaluation or interpretation of the testing for the required diseases and conditions without the written consent from the infant's parents.

§ 2. This act shall take effect immediately.

EXPLANATION--Matter in italics (underscored) is new; matter in brackets

[ ] is old law to be omitted.

LBD04943-01-7

Reflowed for reading: line numbers and page breaks removed. Cite the official text.

Summaries, headlines and scores are AI-generated from the official bill text. How we score bills. Source: NYS Open Legislation.