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J1950Senate2017-2018 SessionResolution

Declare OI Awareness Week

Official title

“Memorializing Governor Andrew M. Cuomo to proclaim May 6-13, 2017, as Osteogenesis Imperfecta Awareness Week in the State of New York”

Sponsor Kevin S. ParkerSD-21
Status
Adopted
Impact
1/10
Minimal
Outcome
Adopted

What's happening

This resolution urges Governor Cuomo to proclaim May 6-13, 2017, as Osteogenesis Imperfecta Awareness Week in New York.

Why it matters

  1. Raises public awareness about Osteogenesis Imperfecta (OI), a rare genetic disorder. that causes fragile bones and has lifelong impacts, potentially reducing stigma and increasing understanding for those affected.

  2. Highlights the importance of increased funding and research for OI,. emphasizing the need for better treatments and support, which could lead to real improvements in patient outcomes if awareness translates to action.

  3. Encourages support for families and individuals living with OI. by officially recognizing their challenges, which may help build community networks and strengthen advocacy efforts for this under-recognized condition.

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Headline styles

Declare OI Awareness Week

Plain English, a few words. Used as the page title.

Sponsors

Primary sponsor
Kevin S. Parker

Senator · Senate District 21

No co-sponsors yet.

History

  1. Adopted
  2. Reported to calendar for consideration
  3. Referred to finance

Full text

1 pageUnderlined is new[Struck] is removedOfficial text on nysenate.gov ↗

Senate Resolution No. 1950 BY: Senator PARKER MEMORIALIZING Governor Andrew M. Cuomo to proclaim May 6-13, 2017, as Osteogenesis Imperfecta Awareness Week in the State of New York WHEREAS, It is the custom of this Legislative Body to recognize official weeks… Show all

Senate Resolution No. 1950 BY: Senator PARKER MEMORIALIZING Governor Andrew M. Cuomo to proclaim May 6-13, 2017, as Osteogenesis Imperfecta Awareness Week in the State of New York WHEREAS, It is the custom of this Legislative Body to recognize official weeks set aside to increase awareness of serious issues which affect the lives of citizens of New York State; and WHEREAS, Attendant to such concern, and in full accord with its long-standing traditions, this Legislative Body is justly proud to memorialize Governor Andrew M. Cuomo to proclaim May 6-13, 2017, as Osteogenesis Imperfecta Awareness Week in the State of New York, in conjunction with the observance of National Osteogenesis Imperfecta Awareness Week; and WHEREAS, Osteogenesis Imperfecta (OI), also known as "brittle bone disease," is a genetic disorder characterized by fragile bones that break easily and affects a person from birth through his or her entire lifetime; and WHEREAS, As there is no cure for OI, increased funding for education and research are necessary to help find more effective treatments and increased public awareness is critical to support those afflicted with this disorder and their families; now, therefore, be it RESOLVED, That this Legislative Body pause in its deliberations to memorialize Governor Andrew M. Cuomo to proclaim May 6-13, 2017, as Osteogenesis Imperfecta Awareness Week in the State of New York, in conjunction with the observance of National Osteogenesis Imperfecta Awareness Week, and to commit to supporting the Osteogenesis Imperfecta Foundation's efforts to raise awareness of this rare and serious disorder; and be it further RESOLVED, That a copy of this Resolution, suitably engrossed, be transmitted to The Honorable Andrew M. Cuomo, Governor of the State of New York.

Reflowed for reading: line numbers and page breaks removed. Cite the official text.

Summaries, headlines and scores are AI-generated from the official bill text. How we score bills. Source: NYS Open Legislation.