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J2619Senate2017-2018 SessionResolution

Honor Sickle Cell Network Event

Official title

“Commending the Sickle Cell Thalassemia Patients Network upon the occasion of hosting its Let's Face Sickle Cell event”

Sponsor Velmanette MontgomerySD-25
Status
Adopted
Impact
1/10
Minimal
Outcome
Adopted

What's happening

This resolution commends the Sickle Cell Thalassemia Patients Network for hosting its "Let's Face Sickle Cell" event in Manhattan.

Why it matters

  1. Raises awareness about sickle cell disease and thalassemia. , both serious hereditary blood disorders that disproportionately impact African-Americans and other communities, highlighting the importance of community education and public health advocacy.

  2. Recognizes the vital role of support organizations like SCTPN. , which provide emotional, social, and informational resources to patients and families who often face lifelong health challenges and stigma.

  3. Draws attention to healthcare disparities and the need for better access to treatment. , including the fact that bone marrow or stem cell transplants are currently the only known cure, underscoring gaps in research, donor matching, and care.

  4. Celebrates community leadership and grassroots health initiatives. , emphasizing how local events can empower affected individuals, foster solidarity, and prompt legislative bodies to acknowledge and support ongoing advocacy efforts.

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Headline styles

Honor Sickle Cell Network Event

Plain English, a few words. Used as the page title.

Sponsors

Primary sponsor
Velmanette Montgomery

Senator · Senate District 25

No co-sponsors yet.

History

  1. Adopted
  2. Reported to calendar for consideration
  3. Referred to finance

Full text

1 pageUnderlined is new[Struck] is removedOfficial text on nysenate.gov ↗

Senate Resolution No. 2619 BY: Senator MONTGOMERY COMMENDING the Sickle Cell Thalassemia Patients Network upon the occasion of hosting its Let's Face Sickle Cell event on Wednesday, November 15, 2017, in Manhattan WHEREAS, It is the custom of this Legislative… Show all

Senate Resolution No. 2619 BY: Senator MONTGOMERY COMMENDING the Sickle Cell Thalassemia Patients Network upon the occasion of hosting its Let's Face Sickle Cell event on Wednesday, November 15, 2017, in Manhattan WHEREAS, It is the custom of this Legislative Body to recognize that the quality and character of life in the communities across New York State are reflective of the concerned and dedicated efforts of those organizations and individuals who would devote themselves to the welfare of the community and its citizenry; and WHEREAS, Attendant to such concern, and in full accord with its long-standing traditions, this Legislative Body is justly proud to commend the Sickle Cell Thalassemia Patients Network upon the occasion of hosting its Let's Face Sickle Cell event on Wednesday, November 15,

2017, in Manhattan; and WHEREAS, The Sickle Cell/Thalassemia Patients Network (SCTPN) began in 1989 as an adult support group for individuals living with sickle cell disease and Cooley's Anemia; and WHEREAS, Under the direction of President Donnette Carroll,… Show all

2017, in Manhattan; and WHEREAS, The Sickle Cell/Thalassemia Patients Network (SCTPN) began in 1989 as an adult support group for individuals living with sickle cell disease and Cooley's Anemia; and WHEREAS, Under the direction of President Donnette Carroll, SCTPN has been dedicated to improving the quality of life of individuals and families living with sickle cell disease, thalassemia (Cooley's Anemia) and other hemoglobin variants; and WHEREAS, Sickle cell disease is a hereditary blood disorder that can cause severe pain and result in damage to the brain and other vital organs like the kidneys, liver, spleen and heart; and WHEREAS, People who carry one sickle cell gene, do not have the disease and experience no symptoms, they are said to have the sickle cell trait; currently, an estimated 100,000 Americans are living with the disease; and WHEREAS, The only known cure for sickle cell disease is through a transplant of bone marrow or stem cells; and WHEREAS, Sickle cell disease is most common in Africans and African-Americans, but the disease can also be found in other demographics, primarily in South and Central America, the Caribbean, Mediterranean countries and India; approximately 1 in 12 African-Americans are diagnosed with the trait; and WHEREAS, The most basic symptoms of sickle cell disease are fatigue, shortness of breath and episodes of serious pain that will likely require hospitalization; these symptoms will begin to show within the very first year of a person's life if they have the disease and the pain ranges from mild to very severe; and WHEREAS, It is the sense of this Legislative Body that when organizations of such noble aims and accomplishments are brought to our attention, they should be celebrated and recognized by all the citizens of this great Empire State; now, therefore, be it RESOLVED, That this Legislative Body pause in its deliberations to commend the Sickle Cell Thalassemia Patients Network upon the occasion of hosting its Let's Face Sickle Cell event on Wednesday, November 15,

2017, in Manhattan; and be it further RESOLVED, That a copy of this Resolution, suitably engrossed, be transmitted to President Donnette Carroll, Sickle Cell Thalassemia Patients Network.

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Summaries, headlines and scores are AI-generated from the official bill text. How we score bills. Source: NYS Open Legislation.