What's happening
This resolution urges Governor Cuomo to declare March 2018 as Bleeding Disorders Awareness Month in New York State.
Why it matters
Raises visibility of underrecognized health conditions. By officially designating a month for bleeding disorders awareness, the resolution aims to improve public understanding of conditions like hemophilia and Von Willebrand disease, which can be life-threatening and are often misunderstood or overlooked.
Encourages early detection and better outcomes. The resolution emphasizes that early diagnosis and prompt treatment are crucial for managing these disorders, potentially reducing complications, disability, and premature death among affected individuals.
Highlights the ongoing need for access to care. It underscores that, despite advances in treatment, continued access to specialized medications and health services remains vital for patients to maintain quality of life, drawing attention to potential gaps or barriers in the healthcare system.
Acknowledges past challenges and ongoing risks. The resolution recognizes the historical tragedies faced by the bleeding disorders community, such as the HIV/AIDS and Hepatitis C epidemics linked to contaminated blood products, underscoring the importance of vigilance in medical safety and patient advocacy.
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Headline styles
Declare Bleeding Disorders Month
Plain English, a few words. Used as the page title.
Sponsors
No co-sponsors yet.
History
- Adopted
- Reported to calendar for consideration
- Referred to finance
Full text
1 pageUnderlined is new[Struck] is removedOfficial text on nysenate.gov ↗
Senate Resolution No. 4036 BY: Senator AKSHAR MEMORIALIZING Governor Andrew M. Cuomo to proclaim March 2018, as Bleeding Disorders Awareness Month in the State of New York WHEREAS, The State of New York takes great pride in recognizing serious disorders by… Show allHide
Senate Resolution No. 4036 BY: Senator AKSHAR MEMORIALIZING Governor Andrew M. Cuomo to proclaim March 2018, as Bleeding Disorders Awareness Month in the State of New York WHEREAS, The State of New York takes great pride in recognizing serious disorders by proclaiming official months to increase awareness of such concerns, which affect thousands of New Yorkers; and WHEREAS, It is the sense of this Legislative Body to memorialize Governor Andrew M. Cuomo to proclaim March 2018, as Bleeding Disorders Awareness Month in the State of New York, in conjunction with the observance of National Bleeding Disorders Awareness Month; and WHEREAS, Bleeding disorders encompass a variety of genetic conditions including hemophilia, Von Willebrand disease, sickle cell anemia, and platelet disorders; these conditions cause an affected person's blood to clot slower than normal, leading to prolonged bleeding which can result from trauma, medical procedures, child birth, or occur spontaneously; and WHEREAS, Symptoms vary, and may include pain, disabling joint/muscle damage, organ failure and in severe cases death; while there is treatment for these conditions, there is no cure; and WHEREAS, Bleeding disorders may affect more than one in 100 New Yorkers, both male and female; while many patients have a family history of bleeding disorders, one in three do not; and WHEREAS, The history of bleeding disorders is one of tragedy and hope; before 1965 there was no treatment for people with bleeding disorders; those with serious symptoms often became physically disabled and often had a life expectancy of 40 years; and WHEREAS, In the 1980s, treatment finally became available for those suffering with these disorders; unfortunately, the treatments gave rise to the scourge of HIV/AIDS and Hepatitis C from contaminated blood; as a result, over 10,000 people with bleeding disorders died, and those who survived lived profoundly altered lives; and WHEREAS, Today, advances in medical research and growing access to care offer people with bleeding disorders the opportunity to lead full, productive lives to the same age as unaffected people; however, the key to realizing this bright future is early diagnosis, proper treatment, and continuing access to the different medications and care services patients need to stay healthy as they grow and age; and WHEREAS, It is appropriate to recognize March as Bleeding Disorders Month in order to foster public awareness and understanding of these bleeding disorders and to encourage early detection and prompt treatment; now, therefore, be it RESOLVED, That this Legislative Body pause in its deliberations to memorialize Governor Andrew M. Cuomo to proclaim March 2018, as Bleeding Disorders Awareness Month in the State of New York; and be it further RESOLVED, That a copy of this Resolution, suitably engrossed, be transmitted to The Honorable Andrew M. Cuomo, Governor of the State of New York.
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