What's happening
This resolution urges the Governor to proclaim May 6-13, 2017, as Osteogenesis Imperfecta Awareness Week in New York.
Why it matters
Draws attention to a rare genetic disorder. By urging a formal awareness week, the resolution spotlights Osteogenesis Imperfecta, which is often misunderstood or overlooked, potentially leading to greater empathy and understanding for those affected.
Encourages public and governmental support for research and education. Emphasizes the need for more funding and educational efforts, which could influence future state or private investments in medical research and support services.
Aligns state action with national health initiatives. The resolution’s timing alongside National Osteogenesis Imperfecta Awareness Week strengthens New York’s participation in broader advocacy efforts, potentially increasing the visibility and impact of these campaigns.
Signals legislative recognition of rare disease communities. By formally considering the needs of people with OI and their families, the state legislature demonstrates a commitment to inclusive health policy and support for vulnerable populations.
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Headline styles
Osteogenesis Imperfecta Awareness Week
Plain English, a few words. Used as the page title.
Sponsors
26 Multi-sponsors
- Clifford Crouch
- Anthony D'Urso
- Patricia Fahy
- Michael J. Fitzpatrick
- Sandy Galef
- Joseph Giglio
- Mark Gjonaj
- Richard Gottfried
- Pamela Harris
- Addie Jenne
- Brian Kolb
- Donna Lupardo
- William Magee
- John T. McDonald III
- David McDonough
- Michael G. Miller
- Walter T. Mosley
- Andrew Raia
- Linda Rosenthal
- Robin Schimminger
- Jo Anne Simon
- Aravella Simotas
- Dan Stec
- Fred Thiele
- Mary Beth Walsh
- Kenneth Zebrowski
History
- Adopted
- Referred to calendar
Full text
1 pageUnderlined is new[Struck] is removedOfficial text on nysenate.gov ↗
Assembly Resolution No. 400 BY: M. of A. Morelle MEMORIALIZING Governor Andrew M. Cuomo to proclaim May 6-13, 2017, as Osteogenesis Imperfecta Awareness Week in the State of New York WHEREAS, It is the custom of this Legislative Body to recognize official… Show allHide
Assembly Resolution No. 400 BY: M. of A. Morelle MEMORIALIZING Governor Andrew M. Cuomo to proclaim May 6-13, 2017, as Osteogenesis Imperfecta Awareness Week in the State of New York WHEREAS, It is the custom of this Legislative Body to recognize official weeks set aside to increase awareness of serious issues which affect the lives of citizens of New York State; and WHEREAS, Attendant to such concern, and in full accord with its long-standing traditions, this Legislative Body is justly proud to memorialize Governor Andrew M. Cuomo to proclaim May 6-13, 2017, as Osteogenesis Imperfecta Awareness Week in the State of New York, in conjunction with the observance of National Osteogenesis Imperfecta Awareness Week; and WHEREAS, Osteogenesis Imperfecta (OI), also known as "brittle bone disease," is a genetic disorder characterized by fragile bones that break easily and affects a person from birth through his or her entire lifetime; and WHEREAS, As there is no cure for OI, increased funding for education and research are necessary to help find more effective treatments and increased public awareness is critical to support those afflicted with this disorder and their families; now, therefore, be it RESOLVED, That this Legislative Body pause in its deliberations to memorialize Governor Andrew M. Cuomo to proclaim May 6-13, 2017, as Osteogenesis Imperfecta Awareness Week in the State of New York, in conjunction with the observance of National Osteogenesis Imperfecta Awareness Week, and to commit to supporting the Osteogenesis Imperfecta Foundation's efforts to raise awareness of this rare and serious disorder; and be it further RESOLVED, That a copy of this Resolution, suitably engrossed, be transmitted to The Honorable Andrew M. Cuomo, Governor of the State of New York.
Reflowed for reading: line numbers and page breaks removed. Cite the official text.
Summaries, headlines and scores are AI-generated from the official bill text. How we score bills. Source: NYS Open Legislation.