What's happening
This resolution urges Governor Cuomo to proclaim May 2017 as Neurofibromatosis Month in New York to raise awareness.
Why it matters
Bringing attention to rare diseases like neurofibromatosis can help drive funding and research. that might otherwise be overlooked, potentially accelerating the search for treatments and cures that could improve or save lives.
Raising public awareness encourages earlier diagnosis and better support for affected families,. as more people—including healthcare providers and educators—become familiar with the signs, challenges, and needs of those living with neurofibromatosis.
State-level recognition amplifies the voices of advocacy organizations and patients,. potentially leading to greater legislative and community support for medical, educational, and social resources related to neurofibromatosis.
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Headline styles
Proclaim Neurofibromatosis Awareness Month
Plain English, a few words. Used as the page title.
Sponsors
Assembly Member · Assembly District 108
No co-sponsors yet.
History
- Adopted
- Referred to calendar
Full text
1 pageUnderlined is new[Struck] is removedOfficial text on nysenate.gov ↗
Assembly Resolution No. 422 BY: M. of A. McDonald MEMORIALIZING Governor Andrew M. Cuomo to proclaim May 2017, as Neurofibromatosis Month in the State of New York WHEREAS, It is the custom of this Legislative Body to recognize official months that are set… Show allHide
Assembly Resolution No. 422 BY: M. of A. McDonald MEMORIALIZING Governor Andrew M. Cuomo to proclaim May 2017, as Neurofibromatosis Month in the State of New York WHEREAS, It is the custom of this Legislative Body to recognize official months that are set aside to increase awareness of serious illnesses that affect the lives of citizens of New York State; and WHEREAS, This Legislative Body is justly proud to memorialize Governor Andrew M. Cuomo to proclaim May 2017, as Neurofibromatosis Month in the State of New York in conjunction with the observance of National Neurofibromatosis Month; and WHEREAS, Neurofibromatosis (NF), a debilitating disorder, affects more than 100,000 Americans; and WHEREAS, Neurofibromatosis Northeast has worked for over 25 years on its mission to find a cure for NF; and WHEREAS, With a mission to finding a treatment and cure for NF, Neurofibromatosis Northeast promotes research, creates awareness and supports those who are affected by NF; and WHEREAS, Increased awareness of NF will help initiate critical research; NF patients and their families are determined to make Neurofibromatosis a household word; and WHEREAS, It is imperative that there be greater awareness of this serious health condition, and more must be done to increase activity at the local, State and National levels; now, therefore, be it RESOLVED, That this Legislative Body pause in its deliberations to memorialize Governor Andrew M. Cuomo to proclaim May 2017, as Neurofibromatosis Month in the State of New York; and be it further RESOLVED, That a copy of this Resolution, suitably engrossed, be transmitted to The Honorable Andrew M. Cuomo, Governor of the State of New York.
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