What's happening
This bill requires facilities advertising Alzheimer’s or dementia special care to disclose specific care details and imposes civil penalties for noncompliance.
Why it matters
Increases transparency for families and caregivers. by requiring facilities to disclose comprehensive details about their Alzheimer’s and dementia care programs, such as philosophy, staffing, activities, environment, and costs, enabling more informed decision-making.
Establishes clear standards for facilities advertising specialized dementia care. , potentially reducing misleading or vague marketing and ensuring that only those meeting specific criteria can claim to offer such services.
Empowers oversight and consumer protection. by mandating disclosures to the Department of Health and state ombudsman, and tying compliance to license renewals, thus raising accountability for facilities and improving quality assurance.
Includes enforceable penalties for noncompliance. , giving the law “teeth” and incentivizing facilities to provide accurate, complete, and timely information or risk financial consequences and jeopardized licensure.
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Who cares
Headline styles
Disclose Alzheimer's Care Details
Plain English, a few words. Used as the page title.
Sponsors
Senator · Senate District 55
1 Co-sponsor
History
- Referred to health
- Referred to health
Companion bill
The same bill in the other chamber. A bill becomes law when one version passes both houses and the governor signs it, so either number can carry it.
Disclose Alzheimer’s Care Details
In Assembly Committee · Aging · Sponsor Steven Englebright
Full text
2 pagesUnderlined is new[Struck] is removedOfficial text on nysenate.gov ↗
STATE OF NEW YORK
1039
2017-2018 Regular Sessions
IN SENATE
January 6, 2017
Introduced by Sens. FUNKE, ORTT -- read twice and ordered printed, and when printed to be committed to the Committee on Health
AN ACT to amend the public health law, in relation to disclosure of special care offered to persons with Alzheimer's disease or dementia
The People of the State of New York, represented in Senate and Assembly, do enact as follows:
Section 1. The public health law is amended by adding a new article 20-B to read as follows:
ARTICLE 20-B
ALZHEIMER'S AND DEMENTIA SPECIAL CARE DISCLOSURE Section 2010. Definitions.
2011. Alzheimer's and dementia special care disclosure.
2012. Enforcement; civil penalties.
§ 2010. Definitions. As used in this article:
1. "Alzheimer's and dementia special care" means care or treatment provided to a person diagnosed with Alzheimer's disease, a related disorder or dementia.
2. "Facility" shall mean a residential health care facility, an adult day health care program or a continuing care retirement community.
§ 2011. Alzheimer's and dementia special care disclosure. 1. Any facility that advertises or markets itself as providing Alzheimer's and dementia special care shall disclose the form of care or treatment provided that distinguishes it as being especially applicable to or suitable for persons diagnosed with Alzheimer's disease, related disorders or dementia.
2. The disclosure shall be made to:
(a) the department;
(b) any person seeking placement in a facility on behalf of a person diagnosed with Alzheimer's disease, a related disorder or dementia; and
(c) the state long term care ombudsman.
EXPLANATION--Matter in italics (underscored) is new; matter in brackets
[ ] is old law to be omitted.
LBD03329-01-7
S. 1039 2
3. The disclosure required in subdivision one of this section shall be in writing and shall include at a minimum:
(a) a statement of the facility's overall philosophy and mission as it relates to the needs of persons diagnosed with Alzheimer's disease, related disorders or dementia;
(b) the process and criteria used to determine placement in and transfer or discharge from Alzheimer's and dementia special care;
(c) the process used for assessment, establishment and implementation of a plan of care, including the methods by which the plan of care evolves and remains responsive to changes in condition;
(d) staff-to-resident ratios, staff training and continuing education practices;
(e) the physical environment and design features appropriate to support the functioning of cognitively impaired adults;
(f) the types and frequencies of activities provided by the facility;
(g) a description of family involvement programs and the availability of family support programs;
(h) the costs of care and any additional fees which may be charged; and
(i) a description of safety and security measures provided by the facility.
4. The commissioner, with equal opportunity for input from consumer and provider representatives, shall promulgate rules implementing the provisions of this section.
§ 2012. Enforcement; civil penalties. 1. An agency shall consider the extent of a facility's compliance with the provisions of this article in considering an application for renewal of a license, certificate or approval.
2. Any facility which violates the provisions of this article shall be subject to a civil penalty not to exceed five hundred dollars. Such penalty may be assessed after a hearing conducted in the manner in which the agency assesses other penalties against licensed, certified or approved facilities.
§ 2. This act shall take effect on the first of January next succeeding the date on which it shall have become a law, provided that the department of health is immediately authorized and directed to take such actions as are necessary to implement this act, including the promulgation of rules in accordance with the state administrative procedure act, on or before its effective date.
Reflowed for reading: line numbers and page breaks removed. Cite the official text.
Sponsor's memo
Title of bill
An act to amend the public health law, in relation to disclosure of special care offered to persons with Alzheimer's disease or dementia
Purpose
This bill will require a residential health care facility, an adult day health care program, or n continuing care retirement community, that advertises or markets itself as providing Alzheimer's and dementia special care shall disclose the form of care or treatment provided.
Summary of provisions
Bill adds a new Article 20-B to the Public Health Law (PHL) entitled "Alzheimer's and dementia special care disclosure." PHL § 2010 defines "Alzheimer's and dementia special care" as care or treatment provided to a person diagnosed with Alzheimer's disease, a related disorder or dementia.
Read the full memo (714 words)
"Facility" includes a residential health care facility, an adult day health program, a continuing care retirement community.
PHL § 2011 sets forth requirements for Alzheimer's and dementia special care disclosure. Any facility that advertises or markets itself as providing Alzheimer's and dementia special care must disclose the form of care or treatment provided that distinguishes it as being especially applicable to or suitable for persons diagnosed with Alzheimer's disease, related disorders or dementia. The disclosure shall be made to the appropriate department, any person seeking placement in the facility on behalf of a person diagnosed with Alzheimer's disease, a related disorder or dementia, and the State Long Term Care Ombudsman.
The disclosure must include information which will help prospective consumers determine whether the program is appropriate for the needs of a particular individual, such as the facility's overall philosophy and mission statement, placement and transfer criteria, the process used for assessment and for implementing and updating a plan of care, staffing ratios and training, physical environment, activities, family involvement programs, fees and costs, and safety and security measures provided by the facility. The Commissioner of Health is authorized, after providing equal opportunity for input from consumer and provider representatives to adopt implementing rules.
PHL 2012 provides that an agency shall consider the extent of a facility's compliance with disclosure requirements in considering an application for renewal of a license, certificate or approval. A facility which violates the provisions of this article shall be subject to a civil penalty not to exceed $500, to be assessed after a hearing conducted in the same manner the agency employs to assess other penalties against approved facilities.
Justification
Programs which advertise or offer special care for persons with Alzheimer's disease, dementia or related disorders should publicly state what factors make their programs especially appropriate for such people. Those seeking such care deserve reliable information on the philosophy, processes, environment and costs of a special Alzheimers care program. Laws similar to the provisions of this bill are already on the books in 18 other states, including Florida, Illinois, Missouri, Oregon and Texas. This bill will provide information to help people with Alzheimer's disease and their families to choose the best program for their specific circumstances. It doesn't require any facility to offer specialized care for people diagnosed with Alzheimer's disease or dementia, nor does it require any specific services or methods. What it does require is disclosure, so that the consumer will know what kind of care or treatment the facility can provide. It will also weed out those operations which prey on families by advertising special care for Alzheimer's and dementia without actually providing any substantially different type of care.
Legislative history
S.7387/A.10074 of 1999/2000; Referred to Senate Aging Committee S.4345/A.159 of 2001/2002; Referred to Senate Aging Committee S.506/A.267 of 2003/2004; Ordered to Third Reading S.697 A.10163 of 2005/2006; Committed to Rules Committee S.499/A.1451 of 2007/2008; Referred to Senate Health Committee S.1448/A.2592 of 2009/2010; Referred to Senate Health Committee S.188/A.3883 of 2011/2012; Referred to Senate Health Committee S.1105/A.3478 of 2013/2014; Referred to Senate Health Committee S.3026/A.2396 of 2015/2016; Referred to Senate Health Committee
Fiscal implications
None.
Effective date
This act shall take effect on the first of January next succeeding the date on which it shall have become a law, provided that the department of health is immediately authorized and directed to take such actions as are necessary to implement this act, including the promulgation of rules in accordance with the state administrative procedure act, on or before its effective date.
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