What's happening
This bill requires healthcare providers to give information and support resources to pregnant women with positive prenatal trisomy diagnoses.
Why it matters
Ensures pregnant women receive detailed, up-to-date, and evidence-based information. about trisomy diagnoses (including Down, Edwards, and Patau syndromes), covering prognosis, life expectancy, developmental outcomes, and available treatments—helping patients make more informed decisions.
Mandates that healthcare providers offer contact information for nonprofit organizations. specializing in support and information for trisomy conditions, which could connect families to valuable community resources and peer support.
Requires the state health department to standardize and disseminate educational materials. to practitioners, including making resources available in multiple languages and culturally appropriate formats, potentially reducing disparities in care and information access.
Allows trisomy-related organizations to request inclusion of their materials on the state health department website. , potentially broadening the range of support and perspectives accessible to affected families.
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Who cares
Headline styles
Inform Parents on Trisomy Diagnoses
Plain English, a few words. Used as the page title.
Sponsors
History
- Referred to health
- Referred to health
Companion bill
The same bill in the other chamber. A bill becomes law when one version passes both houses and the governor signs it, so either number can carry it.
Inform Parents of Trisomy Diagnosis
In Senate Committee · Health · Sponsor Phil Boyle
Full text
2 pagesUnderlined is new[Struck] is removedOfficial text on nysenate.gov ↗
STATE OF NEW YORK
3942
2019-2020 Regular Sessions
IN ASSEMBLY
January 31, 2019
Introduced by M. of A. HYNDMAN, HEVESI -- read once and referred to the Committee on Health
AN ACT to amend the public health law, in relation to prenatal trisomy diagnosis awareness
The People of the State of New York, represented in Senate and Assembly, do enact as follows:
Section 1. The public health law is amended by adding a new section 2533 to read as follows:
§ 2533. Prenatal trisomy diagnosis awareness. 1. For purposes of this section, the following terms shall have the following meanings:
(a) "Health care practitioner" means a medical professional that provides prenatal or postnatal care and administers or requests administration of a diagnostic or screening test to a pregnant woman that detects for trisomy conditions; and
(b) "Trisomy conditions" means trisomy 13, otherwise known as Patau syndrome; trisomy 18, otherwise known as Edwards syndrome; and trisomy 21, otherwise known as Down syndrome.
2. A health care practitioner who orders prenatal tests for a pregnant woman to screen for trisomy conditions shall provide the following information to the pregnant woman if the test reveals a positive result for any of the trisomy conditions:
(a) Up-to-date and evidence-based information about the trisomy conditions that has been reviewed by medical experts and national trisomy organizations. The information must be provided in a written or an alternative format and must include the following:
i. expected physical, developmental, educational, and psychosocial outcomes;
ii. life expectancy;
iii. the clinical course description;
iv. expected intellectual and functional development; and
EXPLANATION--Matter in italics (underscored) is new; matter in brackets
[ ] is old law to be omitted.
LBD04555-01-9
A. 3942 2
v. treatment options available for the particular syndrome for which the test was positive.
(b) Contact information for nonprofit organizations that provide information and support services for trisomy conditions.
3. (a) The commissioner shall provide written information to health care practitioners necessary to implement subdivision two of this section.
(b) Additionally, the commissioner shall post such information on the department's website.
(c) The commissioner shall follow existing department practice to ensure that the information is culturally and linguistically appropriate for all recipients.
(d) Any local or national organization that provides education or services related to trisomy conditions, may request that the commissioner include the organization's informational material and contact information on the department's website. Once a request is made, the commissioner may add the information to the website.
§ 2. This act shall take effect on the ninetieth day after it shall have become a law. Effective immediately, the addition, amendment and/or repeal of any rule or regulation necessary for the implementation of this act on its effective date are authorized to be made and completed on or before such effective date.
Reflowed for reading: line numbers and page breaks removed. Cite the official text.
Summaries, headlines and scores are AI-generated from the official bill text. How we score bills. Source: NYS Open Legislation.