What's happening
This bill requires healthcare practitioners treating epilepsy patients to provide written information about sudden unexpected death in epilepsy and related support resources.
Why it matters
Raises awareness about SUDEP (sudden unexpected death in epilepsy). by requiring healthcare practitioners to actively inform patients with epilepsy about this risk, which is often under-discussed despite its significance for patient safety.
Empowers patients and families with evidence-based information. the law ensures that written materials are medically accurate, up-to-date, and vetted by experts, helping patients make more informed decisions about their care and risk management.
Improves access to support services. by mandating that patients receive contact information for nonprofit organizations specializing in epilepsy, which can connect them to additional resources, support networks, and advocacy groups.
Promotes health equity. by requiring that all materials be culturally and linguistically appropriate, aiming to ensure that patients of diverse backgrounds receive information they can understand and use.
Albany, before your first meeting.
Every bill that moved yesterday, summarized in a sentence and ranked by impact. The Albany Scorecard follows on Sundays.
Free. Unsubscribe in one click. Want alerts on specific bills? Create an account.
Who cares
Headline styles
Epilepsy Death Risks Disclosure
Plain English, a few words. Used as the page title.
Sponsors
History
- Advanced to third reading cal.336
- Reported
- Print number 7807a
- Amend and recommit to health
- Referred to health
- Referred to health
Companion bill
The same bill in the other chamber. A bill becomes law when one version passes both houses and the governor signs it, so either number can carry it.
Inform Epilepsy Patients on Risks
In Senate Committee · Rules · Sponsor Brad Hoylman-Sigal
Full text
2 pagesUnderlined is new[Struck] is removedOfficial text on nysenate.gov ↗
STATE OF NEW YORK
7807--A
2019-2020 Regular Sessions
IN ASSEMBLY
May 23, 2019
Introduced by M. of A. EPSTEIN, SEAWRIGHT, JAFFEE, SAYEGH, McDONOUGH -read once and referred to the Committee on Health -- recommitted to the Committee on Health in accordance with Assembly Rule 3, sec. 2 -committee discharged, bill amended, ordered reprinted as amended and recommitted to said committee
AN ACT to amend the public health law, in relation to information provided to patients regarding sudden unexpected death in epilepsy
The People of the State of New York, represented in Senate and Assembly, do enact as follows:
Section 1. Subdivision 2 of section 2995 of the public health law is amended by adding two new paragraphs (f) and (g) to read as follows:
(f) "Health care practitioner" shall mean a physician, nurse practitioner, or physician assistant licensed or certified pursuant to title eight of the education law.
(g) "Sudden unexpected death in epilepsy" shall mean sudden, unexpected death in patients with epilepsy, with or without evidence of a seizure.
§ 2. The public health law is amended by adding a new section 2997-f-1 to read as follows:
§ 2997-f-1. Provision of information relating to sudden unexpected death in epilepsy. 1. Any health care practitioner who is treating a patient for epilepsy, who has primary responsibility for the treatment and care of the patient, shall provide such patient with the following written information:
(a) current and evidence-based information about sudden unexpected death in epilepsy risk factors and conditions that has been reviewed by one or more accredited medical experts and national epilepsy organizations; and
(b) contact information for nonprofit organizations that provide information and support services for epilepsy conditions.
EXPLANATION--Matter in italics (underscored) is new; matter in brackets
[ ] is old law to be omitted.
LBD11201-06-0
A. 7807--A 2
2.(a) The commissioner shall provide written information to health care practitioners necessary to implement subdivision one of this section, and shall post such information on the department's website.
(b) The commissioner shall ensure that such information is culturally and linguistically appropriate for all recipients.
(c) Any local or national organization that provides education or services related to epilepsy conditions may request that the commissioner include such organization's informational material and contact information on the department's website. Once such a request is made, the commissioner may add the information to the department's website at his or her discretion.
§ 3. This act shall take effect on the ninetieth day after it shall have become a law.
Reflowed for reading: line numbers and page breaks removed. Cite the official text.
Summaries, headlines and scores are AI-generated from the official bill text. How we score bills. Source: NYS Open Legislation.