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K378Assembly2019-2020 SessionResolution

Declare Huntington's Awareness Month

Official title

“Memorializing Governor Andrew M. Cuomo to proclaim May 2019, as Huntington's Disease Awareness Month in the State of New York”

Sponsor Patricia FahyAD-109
Status
Adopted
Impact
1/10
Minimal
Outcome
Adopted

What's happening

This resolution urges the Governor to proclaim May 2019 as Huntington's Disease Awareness Month in New York State.

Why it matters

  1. Raises awareness of a rare, hereditary, and currently untreatable brain disorder. highlighting the serious and progressive impact Huntington’s Disease has on individuals and families, which may lead to increased public understanding and empathy.

  2. Brings attention to the broader social and economic challenges. faced by patients, families, and caregivers, potentially influencing future advocacy, policy, and resource allocation for support services and research.

  3. Supports the efforts of organizations like the Huntington’s Disease Society of America. by recognizing their role in education, fundraising, and community support, which can help foster more robust networks and encourage volunteerism or donations.

  4. Encourages public and governmental action. at local, state, and national levels, which could stimulate further initiatives for research funding, healthcare access, and legislative attention to rare diseases.

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Headline styles

Declare Huntington's Awareness Month

Plain English, a few words. Used as the page title.

Sponsors

Primary sponsor
Patricia Fahy

Assembly Member · Assembly District 109

History

  1. Adopted
  2. Referred to calendar

Full text

1 pageUnderlined is new[Struck] is removedOfficial text on nysenate.gov ↗

Assembly Resolution No. 378 BY: M. of A. Fahy MEMORIALIZING Governor Andrew M. Cuomo to proclaim May 2019, as Huntington's Disease Awareness Month in the State of New York WHEREAS, It is the custom of this Legislative Body to recognize official months that… Show all

Assembly Resolution No. 378 BY: M. of A. Fahy MEMORIALIZING Governor Andrew M. Cuomo to proclaim May 2019, as Huntington's Disease Awareness Month in the State of New York WHEREAS, It is the custom of this Legislative Body to recognize official months that are set aside to increase awareness of serious illnesses that affect the lives of citizens of New York State; and WHEREAS, Attendant to such concern, and in full accord with its long-standing traditions, this Legislative Body is justly proud to memorialize Governor Andrew M. Cuomo to proclaim May 2019, as Huntington's Disease Awareness Month in the State of New York, in conjunction with the observance of National Huntington's Disease Awareness Month; and WHEREAS, Huntington's disease is a devastating, hereditary, degenerative brain disorder for which there is presently no effective treatment or cure; and WHEREAS, Huntington's disease slowly diminishes the affected individual's ability to walk, think, talk and reason, eventually making the person totally dependent upon others for his or her care; and WHEREAS, Huntington's disease profoundly affects the lives of entire families emotionally, socially and economically; and WHEREAS, Currently, more than a quarter of a million Americans have been diagnosed with Huntington's disease or are "at risk" of inheriting the illness from an affected parent; and WHEREAS, The Albany affiliate of the Huntington's Disease Society of America was formed in 2011, with a mission of bringing awareness to the general public regarding Huntington's disease and to raise funds to be used for research, care and education; and WHEREAS, It is imperative that there be greater public awareness of Huntington's Disease, and more must be done to increase activity at the local, state and national levels to support those afflicted as well as their families and caregivers; now, therefore, be it RESOLVED, That this Legislative Body pause in its deliberations to memorialize Governor Andrew M. Cuomo to proclaim May 2019, as Huntington's Disease Awareness Month in the State of New York; and be it further RESOLVED, That copies of this Resolution, suitably engrossed, be transmitted to The Honorable Andrew M. Cuomo, Governor of the State of New York; and the Albany affiliate of the Huntington's Disease Society of America.

Reflowed for reading: line numbers and page breaks removed. Cite the official text.

Summaries, headlines and scores are AI-generated from the official bill text. How we score bills. Source: NYS Open Legislation.