STATE OF NEW YORK ________________________________________________________________________ 1674 2025-2026 Regular Sessions IN ASSEMBLY January 10, 2025 ___________ Introduced by M. of A. McMAHON -- read once and referred to the Commit- tee on Health AN ACT to amend the public health law, in relation to Down syndrome diagnosis awareness The People of the State of New York, represented in Senate and Assem- bly, do enact as follows: 1 Section 1. Paragraph (h) of subdivision 1 of section 207 of the public 2 health law, as added by a chapter of the laws of 2024 amending the 3 public health law relating to Down syndrome diagnosis awareness, as 4 proposed in legislative bills numbers S. 593-A and A. 4138-A, is amended 5 to read as follows: 6 (h)(i) [A] Down syndrome [~~awareness program shall be created to~~ 7 ~~provide~~] including up-to-date and evidence-based information about Down 8 syndrome, [~~in a written or alternative format to health care providers~~ 9 ~~who order tests for a pregnant woman or an infant to screen for Down~~ 10 ~~syndrome that shall include, but~~] not [be] limited to[,] the following: 11 (1) expected physical, developmental, educational, and psychosocial 12 outcomes; 13 (2) life expectancy; 14 (3) the clinical course description; 15 (4) expected intellectual and functional development; 16 (5) available intervention or treatment options; 17 (6) information hotlines specific to Down syndrome; 18 (7) relevant resource centers or clearinghouses; 19 (8) national and local Down syndrome organizations; and 20 (9) any other information the department deems necessary. 21 Such information shall be provided electronically through the depart- 22 ment's website. 23 (ii) The commissioner shall (1) examine and utilize existing practices 24 to ensure that the information provided under subparagraph (i) of this 25 paragraph is culturally and linguistically appropriate for all recipi- EXPLANATION--Matter in italics (underscored) is new; matter in brackets [ ] is old law to be omitted. LBD02838-01-5

A. 1674 2 1 ents; and (2) meet [~~annually~~] with representatives from the Down 2 syndrome community as necessary to ensure such information is current. 3 § 2. Section 2 of a chapter of the laws of 2024 amending the public 4 health law relating to Down syndrome diagnosis awareness, as proposed in 5 legislative bills numbers S. 593-A and A. 4138-A, is amended to read as 6 follows: 7 § 2. This act shall take effect [~~immediately~~] on the one hundred 8 eightieth day after it shall have become a law. 9 § 3. This act shall take effect immediately; provided, however, that 10 section one of this act shall take effect on the same date and in the 11 same manner as a chapter of the laws of 2024 amending the public health 12 law relating to Down syndrome diagnosis awareness, as proposed in legis- 13 lative bills numbers S. 593-A and A. 4138-A, takes effect.

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